Got some very bad news from the hospital

[font=Tahoma, Verdana, Arial, sans-serif]Some of you may recall my thread where I posted about getting a referral to an special team of doctors that try to diagnose unresolved cases when everyone else has failed. Essentially a real life House MD scenario. For those who don't know I'm 21 and have been suffering from excruciating chronic pain in both lower legs. I also can't do much activity anymore due to leg cramps. Walking up a set of stairs causes slight cramps and riding my bicycle has become impossible.[/font]

[font=Tahoma, Verdana, Arial, sans-serif]Well earlier this week I got to meet them and we went over my conditions and did some small tests.[/font]
[font=Tahoma, Verdana, Arial, sans-serif]Scheduled an EMG and took a blood test for some very specific substances before going back home.[/font]
[font=Tahoma, Verdana, Arial, sans-serif]A few hours later the team calls me and asks me to come back to the hospital asap.[/font]
[font=Tahoma, Verdana, Arial, sans-serif]My bloodtest showed an extremely high level of a muscle degenerative substance. The standard value is ~195, I had a little over 15000. It was so high the team assumed it had to be a lab error so I took a second test.[/font]

[font=Tahoma, Verdana, Arial, sans-serif]They called me back yesterday to tell me the second test gave the same result and there was no lab error. They're looking at muscle disorders but require more tests to find out exactly which one.[/font]
[font=Tahoma, Verdana, Arial, sans-serif]Whatever it is I assume it's gonna be pretty bad judging by my blood test. Can't be a good sign if that number on my test was so extremely high that thespecialists were convinced it had to be a lab error.[/font]

[font=Tahoma, Verdana, Arial, sans-serif]I'll get called back with an appointment for a fitness test, muscle biopsy and a few other tests. After those tests they'll likely have the required information to diagnose which muscle disorder I have. It could be anything but all muscle disorders I know of are pretty terrible. It could even be ALS.[/font]
[font=Tahoma, Verdana, Arial, sans-serif]I'm not sure what to feel right now so I decided to share. Feel free to ask me any questions if you have any.[/font]

[font=Tahoma, Verdana, Arial, sans-serif]tldr: 21 years old, just got told I have some sort of muscle disorder and a muscle degenerative substance in my blood test is 75 times the number of a normal healthy person.[/font]

Dayum homie, sucks to hear this. I wish you the best of luck

That really blows hopefully they can tackle it early and put you on meds to control it wish you the best regardless stay strong.

That sucks, dude. Don't shy away from friends and family if you're feeling down. They want to help and be there for you.

Thanks guys. The specialists just called me back with the dates for my tests. Getting an EMG and more blood/urine tests on November 3rd and my muscle biopsy is on the 12th.
After that they'll probably have enough data for a diagnosis.
All I can do is hope it's one of the less terrible muscle disorders that doesn't ultimately result in death.
Judging by my symptoms I'll likely end up in a wheelchair though. My symptoms have progressed from just chronic pain to not being able to do any strenuous activity anymore in less than 2 years.

This is awful to hear Voidal. I wish you the best of luck and stay positive throughout this. I'll be keeping my hopes up for you man! Hopefully they'll be able to do something once they've determined what muscle disorder it is!

God damn dude this is terrible. Wish you the best of luck on getting better!

That's crazy, man. Wish the best for you. You seem to be handling it pretty well, keep it up.

Wanking is a good workout.

I have no clue what a muscle disorder actually is, but judging by how serious the others is, it sounds bad.

But wanking is a good workout.